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Dear FARE Community,

We need your help! Thank you for writing to the FDA\u2019s Director of the Office of Vaccines Research Review, Dr. David Kaslow, letting him know about you or your family\u2019s experience of being impacted by food allergy, and the importance of advancing the Viaskin\u00ae peanut patch to review for approval. We cannot wait on advancing new technologies and treatment options for food allergy.

We Are FARE,

Sung Poblete, PhD, RN

CEO of FARE

If you are a first-time user, you will be prompted to enter your contact information. Clicking \"Sign Up\" will send your message. Signing up also identifies you as an Advocate and adds you to FARE's database. You can opt out or manage your preferences at any time.

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Dear FARE Community,

We need your help! Thank you for letting your House representatives know that we have a time-sensitive opportunity to add peanut-containing foods to WIC Food Packages I and II, which will promote early introduction of potentially allergenic foods to infants. Scientific studies have shown the approach of \u201cEat Early, Eat Often\u201d provides up to an 81% reduction in the risk of developing peanut allergy in infants. We cannot wait on enacting these policies\u2014every day, every year, is an opportunity to create a future free from food allergy.

We Are FARE,

Sung Poblete, PhD, RN

CEO of FARE

Signing up is necessary to determine the contact information for your House Representative(s). Clicking \"Sign Up\" will send your message to them. Signing up also identifies you as an Advocate and adds you to FARE's database. You can opt out or manage your preferences at any time.

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Thank you for taking this important step in letting insurance companies know how we feel about the ways that Pharmacy Benefit Managers have complicated our pursuit of medical care. We cannot wait on life-saving innovations in treatment and medication because of bureaucratic interference. By sharing your story, you are driving change.

On behalf of FARE (Food Allergy Research & Education), which helps more than 33 million people in the U.S. manage the journey of living with a disease that can cause life-threatening allergic reactions, I am grateful for this advocacy and support. FARE is united with the larger patient community.

Please be sure to add your personal story to the letter! Even just a sentence or two helps people understand the reality of daily living with a disease.

With Appreciation,

Sung Poblete, PhD, RN

CEO of FARE

Signing up identifies you as an Advocate and adds you to FARE's database. You can opt out or manage your preferences at any time.

After signing up, to edit the template letter, click on the pencil icon in the lower lefthand corner of the message window.

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Dear FARE Community,

Thank you for speaking up in defense of Section 504, which protects the rights of everyone with disabilities, including the more than 33 million people in the U.S. with food allergy. The power of our collective voice is mighty.

\u00a0

We Are FARE,

Sung Poblete, PhD, RN

CEO of FARE

Signing up is necessary to determine the contact information for your Attorney General. Clicking \"Sign Up\" will send your message to them. Signing up also identifies you as an Advocate and adds you to FARE's database. You can opt out or manage your preferences at any time.

", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "Send an Email to Your State's Attorney General Today!", "navigation_bar_is_transparent": true, "navigation_bar_type": 2, "number_actions_count": 911, "number_actions_last_month_count": 0, "number_participants_count": 839, "number_participants_last_month_count": 0, "order": 52, "page_layout_type": 1, "personalized_campaign_pages": {}, "pos_message": "", "pos_subject": "", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/112041/", "share_story_type": 1, "share_story_video_duration": 60, "short_description": "Section 504 offers essential protections to the food allergy community.", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 3, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "504", "video_notified_users": [], "visible_on_action_center": false}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": null, "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 1, "id": 42107, "inbound_texting_reply_message": "", "internal_only_name": "HR 7669", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": true, "logo_override_url": "", "long_description": "More than 32 million Americans live with life-threatening food allergies.\u00a0

Epinephrine is the only medicine that stops an anaphylactic attack from happening. But over the past ten years,\u00a0the cost of epinephrine auto-injectors has gone from roughly $50 in out-of-pocket expenses to between $400 and $700.\u00a0

Epinephrine has a one-year expiration date even though research has shown the medicine works in year two and three. Recently, Congresswoman Matsui introduced H.R. 7669 - bipartisan legislation that would give the FDA the power to extend the expiration date on certain medicine like epinephrine. This will help lower the cost of this critical medicine over time and help encourage working families to get prescriptions filled.\u00a0

Sign now and tell your Representative to support H.R.7669, and help lower the cost of life-saving epinephrine!", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "Extend Expiration Dates on Epinephrine Auto Injectors", "navigation_bar_is_transparent": false, "navigation_bar_type": 1, "number_actions_count": 396, "number_actions_last_month_count": 0, "number_participants_count": 371, "number_participants_last_month_count": 0, "order": 51, "page_layout_type": 1, "personalized_campaign_pages": null, "pos_message": "Dear {{target_appropriate_greeting}},\n\nI am writing to you, advocating with Food Allergy Research and Education (FARE), asking you to cosponsor H.R. 7669, the Drug Shortages Shelf-Life Extension Act.\n\nThis legislation would extend the expiration dates of a number of highly needed life saving medications, including epinephrine auto injectors which are essential and often unaffordable for food allergy families. One of the greatest burdens food allergy patients and families face is the rising cost of epinephrine auto- injectors.\n\nA CNN story from 2017 cited that the cost of these life-saving devices had increased by more than 400% since 2007. In 2022, prices continue to rise as advocates have shared that they now pay anywhere between $400 to $700 in out-of-pocket expenses as opposed to $50 a few years ago.\n\nLast year, FARE conducted a survey of nearly 6,000 food allergy patients and families where the vast majority of respondents, 91%, earned less than $75K per year and 15% reported an income below the federal poverty guidelines for a family of four.\n\nAmong respondents, our research found that cost was the primary reason for why prescriptions were either left unfilled or not refilled after the medicine expired. Yet, research from 2017 and 2019 about epinephrine auto-injectors and their expiration dates reached the same conclusion--that these devices were effective under the FDA standard years after their expiration dates had been reached.\n\nThe 2019 study said, \"All of the EAIs analyzed up to 30 months (2.5 years) beyond the labeled expiration date retained at least 90% of the drug content.\"\n\nPlease help the food allergy families in our district afford this life saving medication and cosponsor H.R. 7669 today.\n\nSincerely,\n\n{{contact_full_name}}\n{{contact_address}}", "pos_subject": "{{target_appropriate_greeting}}, please co-sponsor HR 7669, the Drug Shortages Shelf Life Extension Act", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/42107/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "{{contact_first_name}}, Tell Your Congressman To Help Increase Access to Epinephrine Auto Injectors", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": true, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 3, "supporters_can_choose_targets": true, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "42107", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": null, "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "Michael.Rodrigues@masenate.gov", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 1, "id": 38918, "inbound_texting_reply_message": "", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": true, "logo_override_url": "", "long_description": "

S. 2614 is a bill about education, knowledge and communication and builds on our existing food allergy law by requiring food servers to have basic training on food allergies.\u00a0 The statement \u201cplease tell your food server if you have a food allergy\u201d is currently required to be printed on menus. The assumption is that servers are informed about food allergies.\u00a0 Some are, but many are not.\u00a0 This bill would require that servers watch a training video that is already required for restaurants to have in house. \u00a0

The bill is currently in the Senate Ways and Means Committee.\u00a0 We know that the Chairman of the Committee wants to hear from supporters as soon as possible, so we need you to email Chairman Rodrigues today. \u00a0

", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "MA Restaurant Law", "navigation_bar_is_transparent": false, "navigation_bar_type": 1, "number_actions_count": 383, "number_actions_last_month_count": 0, "number_participants_count": 362, "number_participants_last_month_count": 0, "order": 45, "page_layout_type": 1, "personalized_campaign_pages": null, "pos_message": "Dear Chairman,\n\nI am a food allergy advocate, working with Nicole Arpiarian and FARE, and I want to ask you to support S. 2614.\n\nFour years ago this month, while dining at a restaurant in Massachusetts, Nicole\u2019s son Tripp, who is allergic to peanuts, almost lost his life due to a severe anaphylaxis reaction, which landed him in the hospital. Although Nicole informed the waiter of his food allergy while ordering, Tripp was served an item filled with peanut butter. As a result of this incident, Nicole has worked with Senator Creem to expand existing allergy training requirements with Bill S.2614.\n\nBill S.2614 is a bill about education, knowledge and communication. It builds on our existing food allergy law by requiring food servers to be given basic training on such allergies. The statement \u201cplease tell your food server if you have a food allergy\u201d is already printed on menus and signs on the wall, but the assumption is that servers themselves are knowledgeable about food allergies. Some are, but many are not. The warnings above give a false sense of security to patrons with food allergies because they believe they are communicating with people who understand their questions and concerns. \n\nPlease vote in favor of Bill S.2614 \u2013 An Act to Improve Food Allergy Awareness. Such training and education for servers would create no additional cost for restaurants and is crucially important for the people who have food allergies (32 million in the US). When Bill S.2614 is law, the statement \u201ctell your server if you have a food allergy\u201d will have the intended effect when the servers and food preparation staff are more knowledgeable about food allergies.\n\nThank you for your consideration.\n\n{{contact_first_name}}{{contact_last_name}}\n{{contact_address}}\n{{contact_state_name}}", "pos_subject": "Please Help Food Allergy Families Dine Out Safer In MA", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/38918/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "{{contact_first_name}}, Help Us Make Dining Out Safer In Massachusetts ", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": true, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 3, "supporters_can_choose_targets": true, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "38918", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": null, "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 1, "id": 39754, "inbound_texting_reply_message": "", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": true, "logo_override_url": "", "long_description": "

AB 2640 requires the State Department of Education to create the California Food Allergy Resource Guide for voluntary use by local schools and early education centers.

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In addition, the guide will provide the practical information our schools need to protect all children with life-threatening food allergies including those without a diagnosis. The guide, furthermore, would serve as an indispensable tool for pupils and parents to help navigate a blizzard of online information regarding food allergy management. Lastly, the guide helps families develop individualized food allergy management and prevention plans.

\u00a0

Please click the button below to email your member of the State Assembly today to urge them to cosponsor and pass AB 2640.\u00a0

", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "Zacky's Bill", "navigation_bar_is_transparent": false, "navigation_bar_type": 1, "number_actions_count": 228, "number_actions_last_month_count": 0, "number_participants_count": 203, "number_participants_last_month_count": 0, "order": 44, "page_layout_type": 1, "personalized_campaign_pages": null, "pos_message": "Dear Assemblymember {{target_last_name}},\n\nAs your constituent and as someone with food allergies or the parent of a child with food allergies, I am writing on behalf of the roughly 675,000 California children with life-threatening food allergies to encourage you to co-sponsor and help pass AB 2640 \u2013 The Zacky Bill. \n\nAB 2640 requires the State Department of Education to create the California Food Allergy Resource Guide for voluntary use by local schools and early education centers. The guide will provide the practical information our schools need to protect all children with life-threatening food allergies including those without a diagnosis. \n\nIn addition, the guide would serve as an indispensable tool for pupils and parents to help navigate a blizzard of online information regarding food allergy management. Lastly, the guide helps families develop individualized food allergy management and prevention plans.\n\nAB 2640 has been endorsed by FARE (Food Allergy Research and Education), the nation\u2019s largest non-profit engaged in food allergy advocacy as well as the largest private funder of food allergy research.\n\nPlease stand up and support California\u2019s children with life-threatening food allergies by cosponsoring and passing AB 2640. \n\nThank you.\n\nSincerely yours,\n\n{{contact_first_name}} {{contact_last_name}}\n", "pos_subject": "Please Cosponsor and Pass AB 2640 \u2013 The Zacky Bill", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/39754/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "Act now to establish food allergy safety guidelines in CA schools and daycare centers, {{contact_first_name}}", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": true, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 3, "supporters_can_choose_targets": true, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "39754", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": null, "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 1, "id": 40958, "inbound_texting_reply_message": "", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": true, "logo_override_url": "", "long_description": "

AB 2640 requires the State Department of Education to create the California Food Allergy Resource Guide for voluntary use by local schools and early education centers.

\u00a0

Please click the button below to email the Governor today to urge them to sign AB 2640 into law.\u00a0

", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "Ask Governor Newsom to sign Zacky's Bill into Law", "navigation_bar_is_transparent": false, "navigation_bar_type": 1, "number_actions_count": 290, "number_actions_last_month_count": 0, "number_participants_count": 250, "number_participants_last_month_count": 0, "order": 43, "page_layout_type": 1, "personalized_campaign_pages": null, "pos_message": "Dear Governor {{target_last_name}},\n\nAs your constituent and as someone with food allergies or the parent of a child with food allergies, I am writing on behalf of the roughly 675,000 California children with life-threatening food allergies to encourage you to sign AB 2640 \u2013 The Zacky Bill into law.\n\nAB 2640 requires the State Department of Education to create the California Food Allergy Resource Guide for the voluntary use by local schools and early education centers. 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We encourage you to utilize a combination of the talking points on the portal to prepare a comment to FDA in your words.", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "Evaluating the Public Health Importance of Food Allergens Other Than the Major Food Allergens Listed in the Federal Food, Drug, and Cosmetic Act: Guidance for FDA Staff and Stakeholders", "navigation_bar_is_transparent": false, "navigation_bar_type": 1, "number_actions_count": 113, "number_actions_last_month_count": 0, "number_participants_count": 108, "number_participants_last_month_count": 0, "order": 39, "page_layout_type": 1, "personalized_campaign_pages": null, "pos_message": "Recommended points to make to FDA and please put this in your own language\n\n\u00b7 As a member of the food allergy community and [personalize with whether you have a food allergy/allergies or are a caregiver of someone with food allergy/allergies, and list food allergies] I/We thank FDA for publishing draft guidance for future labeling of food allergens as required by the FASTER Act of 2021.\n\n\u00b7 I/We believe that any food allergen required by FALCPA only can be removed from labeling requirements via legislation and not via FDA\u2019s framework in this draft guidance and subsequent regulation.\n\n\u00b7 FDA has been thorough in its approach to preparing the draft guidance for adding food allergens requiring labeling. While the framework is well thought out, I/We am concerned that the system proposed will make it difficult for future allergens to be added especially as the US trails the list of labeled allergens in countries like Canada, the European Union, and Australia.\n\n\u00b7 I/We support the use of evidence, prevalence, and severity of Ig-E mediated food allergy, and potency of reactions to determine when data supports labeling other food allergens.\n\n\u00b7 I/we believe that FDA should do more to implement its framework. Relying on citizen petitions to FDA alone puts the burden on others when the FDA has the expertise, knowledge, and responsibility to protect our citizens. I/We request that FDA proactively implement its food allergen labeling framework on an on-going basis. This should include a consistent approach, timeline, and frequency of review (ex., every two to five years) that must be clearly and transparently communicated to all stakeholders. 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Their actions run counter to the spirit and intent of the FASTER Act and worse yet, make it even harder for the food allergy community as dozens of previously safe baked goods can no longer be consumed.\n\nWorse yet, safe and affordable fast-food options are off the table too \u2013 as previously trusted restaurant brands like Chick-fil-A are now using buns that include sesame.\n \nAs your constituent, I ask that you contact the FDA and work with your colleagues to close this loophole which puts the lives of so many at risk and defeats the purpose of the FASTER Act.\n\n\nSincerely yours,\n{{contact_full_name}}\n{{contact_address}}", "pos_subject": "Close the FASTER Act Loophole", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/43874/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 1, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "43874", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": null, "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 3, "id": 47889, "inbound_texting_reply_message": "Hello! 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Thanks for your interest in \"\".", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": false, "logo_override_url": "", "long_description": "", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": false, "name": "Cosponsor the ADINA Act", "navigation_bar_is_transparent": false, "navigation_bar_type": 3, "number_actions_count": 3333, "number_actions_last_month_count": 0, "number_participants_count": 1114, "number_participants_last_month_count": 0, "order": 17, "page_layout_type": 2, "personalized_campaign_pages": null, "pos_message": "Dear {{target_title_last_name}},\n\nI am a constituent, and either I or someone in my family is one of the more than 33 million Americans with a life-threatening food allergy, and I want to thank you for cosponsoring the bipartisan ADINA Act.\n\nAs you know, there is no legal requirement that prescription and over-the-counter drugs state on their labeling whether they contain any of the top-nine allergens or gluten. The most tragic example of why medicine should be labeled happened in 2019 when an 11-year-old girl died because of using a prescription toothpaste that had dairy in it. (https://www.allergicliving.com/2019/04/15/after-daughters-fatal-reaction-to-toothpaste-mother-calls-for-caution/).\n\nOne recent study found that 93% of all medications contain potential allergens, including the oral steroid prednisone, which contains lactose, derived from milk, and is often given to patients following an anaphylactic attack. (https://www.medicalnewstoday.com/articles/324681). Lactose, furthermore, is a popular ingredient in medicine and, according to a 2009 study, was estimated to be used in 20% of prescriptions and 6% of OTC drugs. (https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2008.03889.x). Popular drugs and health aids that are life-threatening for those with a dairy allergy include Advair, Benadryl, Claritin, Montelukast, and Symbicort.\n\nGiven that more than 100 million Americans have life-threatening food allergies, intolerances, celiac disease, or a gluten-sensitivity, we need a fast and simple solution, which is why I am so grateful that you cosponsored this bill to help protect my family and other American food allergy families.\n\nThank you,\n{{contact_full_name}}\n{{contact_address}}", "pos_subject": "Thank You for Supporting the ADINA Act", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/52133/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 1, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "52133", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": null, "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 3, "id": 55363, "inbound_texting_reply_message": "Hello! Thanks for your interest in \"\".", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": false, "logo_override_url": "", "long_description": "", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": false, "name": "Cosponsor the EPIPEN Act", "navigation_bar_is_transparent": false, "navigation_bar_type": 3, "number_actions_count": 61, "number_actions_last_month_count": 0, "number_participants_count": 61, "number_participants_last_month_count": 0, "order": 12, "page_layout_type": 2, "personalized_campaign_pages": null, "pos_message": "Dear {{target_title_last_name}},\n\nI am a constituent, and either I or someone in my family is one of the more than 33 million Americans with a life-threatening food allergy, and I want to thank you for cosponsoring the EPIPEN Act.\n\nMany of this nation\u2019s families are stuck in high deductible health insurance plans, and as this NBC News story highlights, these plans make our life-saving medicine more expensive than a car or mortgage payment. (https://www.nbcnews.com/health/health-care/epinephrine-costs-not-covered-high-deductible-health-plans-rcna62956).\n\nIf someone accidentally eats or comes into contact with their allergen, they can have a potentially fatal anaphylactic attack and epinephrine, as you may know, is the only medicine that can stop or prevent anaphylaxis from happening.\n\nWhile epinephrine auto-injectors are lifesaving, they are also very expensive. A recent NBC News story summarized the problem, \u201cEven as the cost of EpiPens and other epinephrine auto-injectors have stabilized, many are paying thousands of dollars out of pocket each year due to high-deductible insurance.\u201d (https://www.nbcnews.com/health/health-care/epinephrine-costs-not-covered-high-deductible-health-plans-rcna62956).\n\nYour efforts will make it easier for the more than 33 million Americans with life-threatening food allergies to make ends meet while managing their disease.\n\nThank you,\n{{contact_full_name}}\n{{contact_address}}", "pos_subject": "Thank You for Supporting the EPIPEN Act", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/4056/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/55363/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 1, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "55363", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "#0073b5", "background_image_override_url": "", "background_style_type": 2, "campaign_interaction_types": [], "campaign_layout": 2, "campaign_type": 17, "conf_email_from_address": "undefined@undefined", "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": 10, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 3, "id": 56319, "inbound_texting_reply_message": "", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": true, "logo_override_url": "https://quorum-media.s3.amazonaws.com/media/uploaded_files/2024-02-07/34c6e1fca5278fca796ed857bcfc913c/Mu09AnIcVBrrQWJ9fs8K_FARE_logo_h_Wht_Acronym.png", "long_description": "

Have you or someone close to you had an allergic reaction due to the presence of an unlisted top-nine food allergen in a prescription or over-the-counter (OTC) medication?

If so, we want to hear about it! You can make a difference to save lives by telling us what happened. FARE will pass along your story to your House Member and senators to let them know exactly why the ADINA Act (H.R. 4263/S. 2079), which would require prescription and OTC drugs to be labeled for the top-nine food allergens and gluten, needs to become law.

The more stories we get, the better our chances are to get Congress to vote on the ADINA Act!

", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": true, "name": "Share Your Story on the Need for Medication Labeling!", "navigation_bar_is_transparent": true, "navigation_bar_type": 1, "number_actions_count": 0, "number_actions_last_month_count": 0, "number_participants_count": 0, "number_participants_last_month_count": 0, "order": 10, "page_layout_type": 2, "personalized_campaign_pages": null, "pos_message": "", "pos_subject": "", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/8052/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/56319/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 3, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "56319", "video_notified_users": null, "visible_on_action_center": false}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "#ffffff", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": "@", "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "", "custom_css": "", "custom_fields": [], "custom_gamification_points": 10, "custom_javascript": "", "custom_target": "", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 3, "id": 57351, "inbound_texting_reply_message": "Hello! Thanks for your interest in \"\".", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": false, "logo_override_url": "", "long_description": "", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": false, "name": "VT Restaurant Training Bill", "navigation_bar_is_transparent": false, "navigation_bar_type": 3, "number_actions_count": 17, "number_actions_last_month_count": 0, "number_participants_count": 17, "number_participants_last_month_count": 0, "order": 4, "page_layout_type": 2, "personalized_campaign_pages": null, "pos_message": "Dear {{target_title_last_name}},\n\nEarlier this year, Sen. Jacob Oliveira introduced S.700, a bill that would cap the cost of epinephrine auto-injectors at $60 for families that have a food allergic child 18 and under. (https://malegislature.gov/Bills/193/S700/BillHistory).\n\nMany of our state\u2019s families are stuck in high deductible health insurance plans, and as this NBC News story highlights, these plans make our life-saving medicine more expensive than a car or mortgage payment. (https://www.nbcnews.com/health/health-care/epinephrine-costs-not-covered-high-deductible-health-plans-rcna62956).\n\nIf my child accidentally eats or comes into contact with their allergen, they can have a potentially fatal anaphylactic attack and epinephrine, as you may know, is the only medicine that can stop or prevent anaphylaxis from happening.\n\nWhile epinephrine auto-injectors are lifesaving, they are also very expensive. A recent NBC News story summarized the problem, \u201cEven as the cost of EpiPens and other epinephrine auto-injectors have stabilized, many are paying thousands of dollars out of pocket each year due to high-deductible insurance.\u201d (https://www.nbcnews.com/health/health-care/epinephrine-costs-not-covered-high-deductible-health-plans-rcna62956).\n\nBut, we can\u2019t go without. In just the last few months alone, nearly a dozen children have died in the United States because of not having access to epinephrine. \n\nThe rising costs of epinephrine auto-injectors is not new as six years ago, CNN reported that these life-saving devices had increased by more than 400% since 2007 and many now pay anywhere between $500 to $700 for a standard two-pack of epinephrine auto-injectors. (https://www.cnn.com/2017/05/08/health/expired-epipen-safety-study/index.html).\n\nThis is a big problem in Massachusetts as 51.1% of our private sector employees are in a high deductible health insurance plan as of 2021. That means after we pay for a pack of epinephrine auto-injectors for both home and at school costing a total of $1400, we have spent almost as much on medicine as we would on our rent or mortgage payment. \n\nEpinephrine auto-injectors shouldn\u2019t be this expensive. A 2016 CNBC story makes it clear \u2013 the amount of medicine in an epinephrine auto-injector is worth just one dollar. (https://www.cnbc.com/2016/08/25/epipens-cost-just-several-dollars-to-make-customers-pay-more-than-600-dollars-for-them.html). And, the San Jose Mercury News found that it would cost $8 to manufacture an epinephrine auto-injector. (https://www.mercurynews.com/2016/10/01/epipen-outrage-silicon-valley-engineers-figure-true-cost-to-make-lifesaving-auto-injector-about-10/). This bill would set that cost at $60 meaning that manufacturers would still clear 650% in profit.\n\nI encourage you to please cosponsor S.700 and look forward to hearing from you on this important issue.\n\nThank you,\n{{contact_full_name}}\n{{contact_address}}", "pos_subject": "Please co-sponsor S.700 and make life-saving medicine affordable", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/6344/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/57351/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 1, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "57351", "video_notified_users": null, "visible_on_action_center": true}, {"_extra": {}, "ai_options": null, "always_show_to_advocates": false, "background_color_override": "#ffffff", "background_image_override_url": "", "background_style_type": null, "campaign_interaction_types": [], "campaign_layout": 1, "campaign_type": 2, "conf_email_from_address": "@", "conf_email_from_address_username": null, "conf_email_from_name": null, "conf_email_reply_to_address": null, "conf_email_reply_to_address_domain": null, "conf_email_reply_to_address_username": null, "conf_email_reply_to_name": null, "conf_email_subject": null, "custom_call_to_action_button_text": "", "custom_call_to_action_text": "Tell Mars Executives to Take Down the Ad!", "custom_css": "", "custom_fields": [], "custom_gamification_points": null, "custom_javascript": "", "custom_target": "jeff.shuren@fda.hhs.gov", "custom_thank_you_javascript": "", "description_alignment_type": 1, "facebook_leadgen_form_id": "", "facebook_leadgen_form_questions": null, "fixed_post_message": "", "fixed_post_message_two": "", "fixed_pre_message": "", "fixed_pre_message_two": "", "footer_html": "", "full_bleed_header_image_contain": false, "full_bleed_header_image_url": "", "full_bleed_header_text_is_left_aligned": true, "full_bleed_header_type": 1, "full_bleed_header_video_url": "", "gamification_points_mode": 3, "id": 67671, "inbound_texting_reply_message": "Hello! Thanks for your interest in \"\".", "internal_only_name": "", "is_custom_targeting_enabled": null, "is_one_click_registration_enabled": false, "logo_override_url": "", "long_description": "", "multi_action_ordered_children_ids": [], "multi_action_parent_id": null, "multiple_actions_allowed": false, "name": "Message to Mars Executives", "navigation_bar_is_transparent": false, "navigation_bar_type": 3, "number_actions_count": 0, "number_actions_last_month_count": 0, "number_participants_count": 0, "number_participants_last_month_count": 0, "order": 1, "page_layout_type": 2, "personalized_campaign_pages": null, "pos_message": "Dear Dr. Califf and Dr. Shuren,\n\nEither I, or someone that I love, is one of the more than 33 million Americans with a life-threatening food allergy. \n\nThe food allergy community represents more than 10% of the nation\u2019s citizens and is bigger than the combined populations of America\u2019s twenty largest cities.\n\nAs you know, the risk of fatal anaphylaxis is a constant threat and concern especially in high-risk environments like visiting a restaurant or traveling on an airplane. \n\nYet since 1987, the only FDA-approved device to prevent anaphylaxis has been an epinephrine auto-injector.\n\nEpinephrine auto-injectors are painful and can be intimidating to use, and the idea of jamming a needle into my leg or that of a child\u2019s is often a barrier to treatment.\n\nFor more than 36 years, the food allergy community has waited for an alternative. Since 1987, innovation has fundamentally changed the way we live and work.\n\nBut not for us \u2013 the more than 33 million Americans with life-threatening food allergies.\n\nThat is why I am encouraging you to approve neffy\u00ae, a nasal epinephrine spray, and allow the food allergy community to have a choice. As you know, neffy\u00ae was overwhelmingly approved by an advisory committee for both adults and children during a May 11th meeting.\n\nBut since then, the FDA has delayed its final approval.\n\nWe don\u2019t want to wait any longer.\n\nPlease approve neffy\u00ae on Tuesday, September 19 and give American\u2019s food allergy community a needle-free alterative. We are counting on you.\n\nThank you.\n\n{{contact_full_name}}\n{{contact_address}}", "pos_subject": "Please approve neffy\u00ae", "rate_limit": null, "registration_page": "/api/grassrootsregistrationpage/9082/", "regulation_id": null, "required_video_link": "", "resource_uri": "/api/grassrootscampaign/67671/", "share_story_type": 1, "share_story_video_duration": null, "short_description": "", "should_rework_with_ai": false, "should_use_footer_html": false, "show_num_actions": false, "show_num_supporters": true, "single_body_for_all_messages": false, "status": 2, "summary_display_option_type": 1, "supporters_can_choose_targets": false, "targeting_type": 1, "unique_identifier": "", "vanity_url_slug": "67671", "video_notified_users": null, "visible_on_action_center": false}], "customFields": [], "registrationPages": [{"id": 12782, "form_fields": [{"order": 0, "props": {"id": null}, "registration_field_type": 1}, {"order": 1, "props": {"id": null}, "registration_field_type": 2}, {"order": 2, "props": {"id": null}, "registration_field_type": 4}], "pre_text": "", "post_text": "", "post_submission_action_type": 1, "submit_button_text": "Submit", "thank_you_text": "Thank you for Advocating!", "redirect_url": "https://foodallergy.org", "custom_javascript": "", "custom_after_registration_javascript": "", "custom_css": "", "should_allow_partial_address": false}, {"id": 4056, "form_fields": [{"order": 0, "registration_field_type": 1}, {"order": 1, "registration_field_type": 2}, {"order": 2, "props": {"label": ""}, "registration_field_type": 5}, {"order": 3, "registration_field_type": 4}, {"order": 4, "props": {"id": null}, "registration_field_type": 3}], "pre_text": "Please fill out the fields below to sign up as a FARE Advocate!", "post_text": "", "post_submission_action_type": 1, "submit_button_text": "", "thank_you_text": "Thank you for contacting your congressman and senators to make your voice heard on this important issue!", "redirect_url": "https://foodallergy.org", "custom_javascript": "", "custom_after_registration_javascript": "", "custom_css": "", "should_allow_partial_address": false}, {"id": 9082, "form_fields": [{"order": 0, "props": {"id": null}, "registration_field_type": 1}, {"order": 1, "props": {"id": null}, "registration_field_type": 2}, {"order": 2, "props": {"id": null}, "registration_field_type": 5}, {"order": 3, "props": {"id": null}, "registration_field_type": 4}, {"order": 4, "props": {"id": null}, "registration_field_type": 3}], "pre_text": "", "post_text": "", "post_submission_action_type": 2, "submit_button_text": "", "thank_you_text": "Thank yoi\u00a0", "redirect_url": "https://foodallergy.org", "custom_javascript": "", "custom_after_registration_javascript": "", "custom_css": "", "should_allow_partial_address": false}, {"id": 8960, "form_fields": [{"order": 0, "props": {"id": null}, "registration_field_type": 1}, {"order": 1, "props": {"id": null}, "registration_field_type": 2}, {"order": 2, "props": {"id": null}, "registration_field_type": 5}, {"order": 3, "props": {"id": null}, "registration_field_type": 4}, {"order": 4, "props": {"id": null}, "registration_field_type": 3}], "pre_text": "

If you are interested in meeting with your U.S. Representative or a member of their staff in their district office this August, please fill out the form below!

", "post_text": "", "post_submission_action_type": 1, "submit_button_text": "", "thank_you_text": "Thank you for expressing interest in meeting with your U.S. Representative's office this August to advocate on behalf of the food allergy community! Joe Kalmin, FARE's Senior Director of Government Affairs, will reach out to you in the coming days with more information on the next steps. Thanks again for your crucial support!", "redirect_url": "", "custom_javascript": "", "custom_after_registration_javascript": "", "custom_css": "", "should_allow_partial_address": false}, {"id": 8401, "form_fields": [{"order": 0, "registration_field_type": 1}, {"order": 1, "registration_field_type": 2}, {"order": 2, "props": {"label": ""}, "registration_field_type": 5}, {"order": 3, "registration_field_type": 4}, {"order": 4, "props": {"id": null}, "registration_field_type": 3}], "pre_text": "Please fill out the fields below to send a letter to your State Senator on this important issue!", "post_text": "", "post_submission_action_type": 1, "submit_button_text": "", "thank_you_text": "Thank you for contacting your state senator to make your voice heard on this important issue!", "redirect_url": "https://foodallergy.org", "custom_javascript": "", "custom_after_registration_javascript": "", "custom_css": "", "should_allow_partial_address": false}, {"id": 8052, "form_fields": [{"order": 0, 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Please use the form below to register for the Congressional Food Allergy Research Caucus's Food Allergy 101\u00a0lunch briefing on Wednesday, December 6th, from 12:00-1:00 PM in 2044 Rayburn.

If you have any questions, please don't hesitate to reach out to Joe Kalmin at jkalmin@foodallergy.org.

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Thank you for registering for the Congressional Food Allergy Research Caucus's Food Allergy 101\u00a0lunch briefing on Wednesday, December 6th, from 12:00-1:00 PM in 2044 Rayburn.

If you have any questions, please don't hesitate to reach out to Joe Kalmin at jkalmin@foodallergy.org.

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Act now!

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